I am helping some colleagues and peers at Boston University with a research grant project. If you are a parent of a child 6-16 years old (with or without disability) and residing in Canada or the United States, you are encouraged to take the PEP survey online at this link and win an iPod Touch. To participate, click here.
The Participation and Environment Project (PEP) is a federally funded project through the National Institute on Disability and Rehabilitation Research (NIDRR) of the U.S. Department of Education. This project involves collaboration among researchers in the United States (Wendy Coster, Boston University and Gary Bedell, Tufts University) and Canada (Mary Law, McMaster University). Here is an excerpt from the letter sent to me by my former BU professor, Mary Khetani, MA, OTR:
“For the past two years, we have been working closely with parents, researchers, and service providers to develop the Participation and Environment Measure-Children and Youth Version (PEM-CY), an online survey to gather parent input about how their children participate in typical activities in the home, at school, and in the community. Parents are asked to report on the kinds of activities their children participate in, how often and how much they participate, whether or not they desire change and if so what type(s) of change, and what helps and/or hinders their child’s participation in each environment. We designed this survey to gather information to enable policymakers to be more responsive to the participation related needs of families.”