The PHILIPPINE SOCIETY FOR ORPHAN DISORDERS, INC. needs 500,000 signatures! Please join the campaign to increase awareness on rare diseases and to rally lawmakers in supporting the enactment of the bill or Rare Diseases Act of the Philippines. The Bill will help provide patients with rare diseases better access to adequate medical care, health information, and healthcare products needed to treat their conditions. It establishes a system to coordinate a sustainable research & development initiatives and resource generation efforts among relevant agencies of government and private sector toward improving the quality of life of patients with rare diseases and their families.
WHY DO WE CAMPAIGN FOR SIGNATURES?
PSOD has launched a nationwide signature/petition campaign to increase awareness regarding rare diseases and to rally Filipinos in pushing the lawmakers to support the proposed Rare Disease bill. PSOD hopes to raise 500,000 signatures in time for the World Rare Disease Day celebration on Feb 26, 2011. Your signature means you support our campaign and believe that everyone has a right to life—and a right to quality life.