The PHILIPPINE SOCIETY FOR ORPHAN DISORDERS, INC. needs 500,000 signatures! Please join the campaign to increase awareness on rare diseases and to rally lawmakers in supporting the enactment of the bill or Rare Diseases Act of the Philippines. The Bill will help provide patients with rare diseases better access to adequate medical care, health information, and healthcare products needed to treat their conditions. It establishes a system to coordinate a sustainable research & development initiatives and resource generation efforts among relevant agencies of government and private sector toward improving the quality of life of patients with rare diseases and their families.
WHY DO WE CAMPAIGN FOR SIGNATURES?
PSOD has launched a nationwide signature/petition campaign to increase awareness regarding rare diseases and to rally Filipinos in pushing the lawmakers to support the proposed Rare Disease bill. PSOD hopes to raise 500,000 signatures in time for the World Rare Disease Day celebration on Feb 26, 2011. Your signature means you support our campaign and believe that everyone has a right to life—and a right to quality life.
Before you check out Corolla short sales, show your support for this awareness campaign by clicking here to visit the PSOD website.
Theme: “Harmonizing Strategies in Stroke: from Bench to Bedside to Backyard”
What & Where
18-20 August 2010
Marco Polo Hotel
Davao City, Philippines
Pre-convention workshops on 18 August 2010 include:
- Stroke Prevention in the Community (for barangay/rural health workers and midwives) – Venue: Southern Philippines Medical Center (formerly Davao Medical Center) with workshop directors Dr. Meldi Anuta and Dr. Arnold Pineda
- Nursing Care in Stroke (for nurses) by Liza Floresca,R.N,M.A.N. and Dr. Annabelle Lao – Venue: SPMC
- Emergency Medical Services in Acute Stroke” by Dr. Rene Lopez – Venue: SPMC
- Applying Current Neuroplasticity Principles into a Task and Context Specific Exercise Program by Dr Manolete Guerrero – Venue: San Pedro Hospital
Topics for Day 1 of the Convention (19 August 2010)
- “Acute Stroke Management” – Dr. Roy Barcinas
- “Secondary Stroke Prevention” – Dr. Vincent De Guzman
- “Advances in Stroke Neuro-imaging” – Dr. Anatole Garcia
Topics for Day 2 of the Convention (20 August 2010)
- Neurosurgery session on stroke in the elderly – panelists: Dr. Manuel Mariano, Dr. Peter Rivera and Dr. Rhoderick Casis.
- “New Definition for Cerebrovascular Diseases – Is it Ready for Implementation?” by Dr. Ester Bitanga
- “Recovery After Stroke” by Dr. Maricar Yumul
- “Evaluation of Stroke Patients for Clearance” – Dr. Arnold Pineda
Source: The Mindanao Daily Mirror
There certainly is a very interesting range of topics that is being covered for this event. It is great that a multidisciplinary approach to intervention strategies is being employed. And stroke can be prevented, given the right education on warning signs and precautionary lifestyle changes (including maybe the best weight loss product to assist with weight issues), which can definitely make all the difference.
July 17-23 is National Disability Prevention and Rehabilitation Week in the Philippines!
This year’s celebration carries the theme ‘’SA ISTRUKTURANG ACCESSIBLE, LAHAT AY ABLE,” a combination of English and Tagalog languages. However, for common understanding among the general public an English text is conceptualized as “ÁN ACCESSIBLE STRUCTURE IS ABLE TO HELP ALL.”
The theme was aptly chosen and adopted by the members to align with the functions of the lead agency whose mandate, among others, concerns the promotion of the accessibility of persons with disabilities towards a barrier-free environment pursuant to Batas Pambansa Bilang 344 better known as the “Accessibility Law.” This is ably supported by Republic Act No. 7277 otherwise known as the “Magna Carta for Disabled Persons” and its amendatory law, Republic Act No. 9442. This is being considered as an important factor in order to enhance public understanding of accessibility issues, and where relevant, they can be used as resources in the development of other national and local standards.
Best practices in universal design among buildings and other public infrastructures are also being considered in the theme as basis for discussion among local building officials/authorities, architects and building owners to comply with the universal design principles. This will provide affordable design practices that meet the needs of the widest possible range of people who use the facility.
To view the schedule of activities for this special celebration, visit the NCDA website. And as it is expected lots of people will be convening to these activities, it’s always best to keep your mmf drawer locked or practice precautionary measures in cases of emergencies.
